Posts Tagged ‘migraine’
Researchers at the Headache Center of Rio, in Rio de Janeiro, Brazil evaluated whether different varieties of red wines would trigger migraine differently. The researchers were also curious to see whether varying levels of reseveratrol and flavonoids made a difference. Reseveratrol is an active ingredient found in the skin of of red grapes. It has long been known to reduce the risk of heart disease. Flavonoids are compounds found in fruits and vegetables and can provide antioxidant benefits. The study focused on migraineurs who considered themselves regular wine drinkers, and who also reported a relationship between wine intake and migraine attacks. The patients were asked to drink half bottles of various red wines. The wines included merlot, cabernet sauvignon, malbec and tannat. The participants were asked to take a minimum break of 4 days in between each wine testing. Approximately 87% of the patients experienced a migraine at least one time within 12 hours of having wine. However, just 54% reported migraine attacks on at least two occasions, and 33% reported migraine attacks in all 4 wine testing sessions. When the researchers compared the wine types in the patients who had at least two migraine attacks after trying all four wines, the malbec and tannat varieties triggered migraine more often than the merlot or cabernet sauvignon.
The researchers concluded that the migraineurs studied, who all stated red wine was a trigger for them, did not get migraines most of the time. Interestingly though, while the tannat and malbec wines used were most responsible for triggering migraines, they also had the highest amount of flavonoid content! Before you consider changing your choice of red wine however, keep in mind that the researchers believe controlled studies are needed to confirm their observations…. Headache The Journal of Head and Face Pain May 2012
Alice in Wonderland Syndrome is named after the famous Lewis Carroll novel. The condition was first noted in 1955 by John Todd, a psychiatrist. Todd named it for Carroll’s book Alice’s Adventures in Wonderland. It is believed that Lewis Carroll suffered from severe migraines and the disorder as well.
AIWS is a neurological disorder that disturbs signals that are sent from the eyes to the brain, causing a distortion in perception. People with the syndrome describe visual, auditory and tactile hallucinations and altered perceptions which can be confusing and terrifying. Typically, they may see the sizes of body parts inaccurately, and often view the sizes of other objects in a distorted way.
While facts about AIWS are still not clear, there are some common factors linked to the syndrome. Typical migraine is an important cause, as well as a trademark symptom of it. Other neurological conditions can also trigger the syndrome. It is also relatively common in children
AIWS has no proven effective treatment, but treatment programs for the probable causes are used to bring about relief.
To see and hear a patient with AIWS describe her experiences go to www.webmd.com/migraines …..
It was a little over a year ago that I had the pleasure of meeting Dr. Robbins. Like most headache/migraine patients I had spent many years bouncing around between Family Practice doctors, Internists, Allergists, Neurologists, all to no avail. At the time I walked into Dr. Robbins clinic, I had little expectation that I was going to find any answers, let alone any actual treatments that would reduce the frequency or severity of my migraines. I was haggard, depressed, hadn’t slept well in weeks, and was tired of going through the same routine with doctor after doctor. I’m sure he was glad to see me too.
My wife (who is an Anesthesiologist) received a recommendation to the Robbins Headache Clinic from asking several colleagues if they had any idea of who might be able to help me with my migraines, and Dr. Robbins was mentioned. As we reside in Arkansas, the prospect of traveling all the way to Chicago for treatment did not sound appealing, at all, and I was reluctant to commit to an appointment with a physician I had never heard about, especially if it included flying across the country. In all honesty, I was jaded, and felt at that time that there was no one who could help me. Like most of you reading this blog, I was already convinced that this would be a waste of time and money. However, being a curious creature, I decided to do what everyone does these days when they want to start an investigation into a person’s expertise and character, and I was very methodical in my Google search. (I actually have a black-belt in Googlefu, so I was confident I would find an excuse not to make the appointment.) Once I began reading his hundreds of articles and several books, my doubts began to diminish. Then, I came across his curriculum vitae (CV), (which to a layperson such as myself, I knew to be a Latin word meaning, “much smarter than you will ever be.”)
I began pouring over the CV for obvious signs that he was not the doctor for me (e.g. majored in Bowling during college, or perhaps spent 9 years doing “magnetic therapy” in a foreign country that I couldn’t locate on a map. The problem was, Dr. Robbins has the longest and most extensive CV I have ever read in my life. Matter of fact, not only had he authored at least two books, but also had written over 200 peer reviewed articles that had been published in every reputable medical periodical in existence. As I began to analyze his CV like a forensic detective surveying a crime scene, I began to realize that even for a person with a degree in English Literature and a minor in Philosophy, this was going to take an extensive amount of time, and coffee, in order to absorb all the information contained therein. I got through half of his CV before I conceded defeat. Joyce’s Ulysses took less time for me to read, and I think I even understood more of that book than all the letters attached to Dr. Robbins’ name, except the MD.
I began to realize that this doctor was better trained in headaches, pain management, and preventative medication than all the other doctors I had ever seen, combined. So without admitting to my wife that she was right about scheduling an appointment with his clinic, I reluctantly scheduled an appointment, and began planning for another horrible experience with a doctor that didn’t understand my migraines. As I stated above, I arrived looking like a walk-on for the TV series The Walking Dead.
Dr. Robbins greeted me with a big smile, and so did his staff, and as I looked around the waiting room, I began to notice several things different about his clinic that I had never seen in other doctors’ offices. Covered from wall-to-wall was literature on headaches/migraines, including handouts of his most recent studies and published articles. As I sat in the waiting room, perusing the various literature, I noticed a sign on the entryway into the office, which simply read: “Keep Calm and Carry On.”
For reasons I still can’t express, that sign evoked a lot of emotion in me, like it was specifically put there for my benefit. Something about the words conveyed a sense of inequity that was recognized by all, especially the patients, and yet at the same time I conveyed a sense of not surrendering, to keep moving, to keep fighting, “to carry on” despite the onslaught of pain and suffering. I remember thinking that this sign was perfect for a migraine specialist’s office, as I think most of us feel a sense of unfairness about our disease, a certain injustice that we all share. From being unable to control the pain, to the misconceptions of doctors, employers, friends, and even family; a lot of times I think we feel we are fighting a losing battle against not only the medical establishment, but against society as a whole, and yet we continue to fight. We get up every day knowing that today we are very likely to experience the worst pain we have ever felt in our life; traumatic pain, devastating, and debilitating pain, which we have no ability to control. To me it feels like a great deal of the time I am at war, besieged and attacked by my own body and mind, and there is nothing I can do to stop it, nothing. Perpetual warfare, in any circumstance, is enough to drive even the most balanced person to insanity and hopelessness.
My appointment with Dr. Robbins did not go as I expected. He was compassionate, considerate, he listened to what I had to say, and for the first time in my life, I was actually invited to sit down in his office and talk about my migraines. I had never even seen the inside of an actual doctor’s office before, and to this day, it is the only time it has been offered. Not only did I leave his clinic that day with a better understanding of my migraines, but I had weapons (I use that word purposefully, because I am at war) to fight back against the perpetual onslaught of pain, and indignity suffered by all of us. And as it turned out, Dr. Robbins was the only doctor I have ever encountered that was able to help decrease my migraines.
A few months later, I was studying a legal case that surrounded around a set of facts of concerning trademark infringement. The plaintiff in the case tried to claim a copyright infringement against the defendant for the use of a slogan, none other than, “Keep Calm and Carry On.” The plaintiff, as I learned, lost the lawsuit. The poster pictured in the upper left corner had been created by the Ministry of Information by order of the British government in 1939, and was designed as a propaganda poster to increase morale among the British public during WWII. It was distributed around the city squares and government buildings to prepare the public for what was thought to be a certain invasion by the Germans. It was intended to display the unmitigated pride and fearlessness of the British population who were awaiting imminent destruction. The crown displayed on the poster was intended to remind the population that it was a direct message from their King, speaking to his people. The posters were intended to convey the message that no matter what happened: invasion, bombings, complete destruction of town and country, that it was the duty of the populace to remain strong, no matter what agony or suffering would be inflicted upon them. It was meant to invoke a sense of pride, courage, and calm dignity for which the British are commonly known. It was meant as a message for people that were under siege, facing an enemy that they had no ability to control or defeat.
As I sat there reading the case, I understood why I thought it was perfect for a migraine specialist’s office and why it had meant so much to me at the time. I had realized something innately in that poster that spoke directly to the way I was feeling, even though I didn’t realize it at the time, the poster really was meant for me and others like me. It is a message that no matter what happens to us, no matter how unfair the circumstances may be, or the pain inflicted, it is our duty to fight the good fight. As Churchill would later state, “Never give in, never give in, never; never; never; never – in nothing, great or small, large or petty – never give in except to convictions of honor and good sense.” I can’t think of a more apt saying to have in the office of a doctor dealing with people who are chronically ill, and are constantly under threat of bombardment at any second, for the worst pain they will ever experience or imagine.
Since the copyright on artistic works expires after 50 years in the UK, and the phrase was in such common usage, the image is now in the public domain, hence the many companies selling t-shirts, coffee mugs, hats, books, and posters- just like the one in Dr. Robbins’ office. It is amazing to me to think of the history involved in this one simple message, which after 73 years, found its way into my life at a time when I felt the weakest, and has indeed inspired me to fight, and to never, ever, ever, give up. The next time you feel hopeless, helpless, like everything is at its worst and you simply can’t take it anymore, I implore you to remember this story and the history that made it manifest, and to never give up. No matter what is happening, do your best, do your duty to your family and loved ones, and “Keep Calm and Carry On.”
I always welcome any thoughts, experiences, critique, or accolades in regards to my posts. Please feel free to share your stories and comments with me and others. The more we communicate the more we learn, and the sooner we will find better solutions to sustain the imminent bombardment. Thanks for reading, and may you have a pain free day.
DISCLAIMER: I am not a healthcare provider, and I do not provide any medical advice, diagnosis or treatment. The information presented here is designed for general informational purposes and discussion only, and is not intended to replace a physician’s judgment about the appropriateness or risks of a procedure, medication, product or diagnosis. Always consult your doctor about any medical questions or conditions you may have.
We have a medication supply problem in the US, and Midrin is no exception..Midrin(generic is the only form available) is a combo drug of a mild sedative, a mild pure migraine med, and acetaminophen…Prodrin takes out the sedative(which is good) and adds in a small amt of caffeine. Only the generic Midrin is available, and that supply goes off and on..Prodrin is usually available, but the pharmacy has to order it. These meds fit the bill as being milder, no opioid, do not hurt the stomach, and relatively inexpensive(altho Prodrin can cost $2.00 per tablet). Midrin(generic) can certaily cause tiredness, but Prodrin does not. Midrin/Prodrin are not “triptans”, such as sumatriptan(Imitrex), Maxalt, Zomig, Relpax, etc.. Some people cannot tolerate triptans, but can tolerate Midrin or Prodrin. These meds can increase the blood pressure, at least for a # of hours, so if you have high(or borderline) blood pressure, we use these with caution. Of course, consult your physician about any med. and side effect.
Sleep apnea and lack of sleep are more likely seen in children with migraine. A study conducted at St. Christopher Hospital for Children, Drexel University, in Philadelphia found that children with migraine were twice as likely to have sleep apnea. Sleep apnea, also called sleep disordered breathing involves repeated awakening from sleep because the upper airway for breathing has been obstructed. Severe migraine was also linked to shorter sleep time, longer time to fall asleep, and shorter REM sleep as well. REM sleep is the sleeping stage when most dreams are remembered.
Sleep apnea was also frequent in children with nonspecific headache, as well as children who were overweight.
“Sleeping problems can exacerbate the problems migraine causes on a child’s health and may hinder a child’s performance at school” said study author Martina Vendrame, MD, PhD. ”Parents and doctors need to be aware of the strong likelihood of sleep disorders in children with migraine and seek appropriate preventions and treatments.” …….Science Daily 4/8/12
According to research published in Neurology, the medical journal of the American Academy of Neurology, most children who suffer from chronic daily headache may outgrow the condition.
The study found 60% of the children no longer had chronic daily headache after one year, and 75% showed no symptoms after two years. Only 12% of the children tested still had symptoms of chronic daily headache after eight years. However, 75% of the children had episodic migraine or probable migraine, while 11% of the children were headache free after eight years.
“Our results suggest there is hope for children who experience these headaches and for their parents, who also deal with the frustration and considerable disability that this condition can bring,” said study author Shuu-Jiun Wang, MD, of the National Yang-Ming University School of Medicine in Taipei, Taiwan. ”Parents and children should be prepared for the possibility that while chronic daily headache may get better over time, headaches in general may never fully go away, but for most children the headaches are much less frequent when they become young adults,” said Wang.
According to the study, a history of migraine was a major risk factor for children with chronic daily headache. The likelihood of having higher headache frequency and the condition eight years later was found in children who had chronic daily headache before the age of 13, those who overused pain medications, and those with the condition for more than two years….. Science Daily 4/8/12
NDPH occurs when someone rather suddenly has the onset of daily headache; the headache is usually a mixture of tension and migraine type features. The headache may start over hours or one day, often in someone with no previous serious history of headache. While we know that chronic daily headache occurs in about 3.5% of the population, we are not sure of the true incidence of NDPH. It is probably underestimated in studies.
Many with NDPH experience rather mild, or moderate, headaches that go away in months or 1 or 2 years with little treatment. However, in others the headaches are moderate to severe, last years, and are relatively refractory to treatment. Our usual therapies for migraine patients work better than for those with NDPH. Women are probably more likely to have NDPH, from age 15 to 30(possibly with an older age of onset, on average, in men). Most experience 24/7 headaches, with migraine features(nausea,sensitivity to light or sound, lightheadedness,dizziness, neck pain, visual disturbances(primarily blurring), and sensitivity to smells). Throbbing and pressure are the usual pain characteristics, often bilateral(both sides of the head).
The reasons for NDPH are unclear; many patients note an antecedent flu-like or viral illness. Epstein Barr Virus may be impolicated in some. Stress, mild head injury, and toxic exposures have also been implicated. In future blogs I will talk about treatment.
Good ol’ aspirin..compounded by the (brilliant for the time) German organic chemists in about 1872…found to have, by accident, anti-arthritis and pain properties; in 1900, people in the U.S. were buying aspirin from Canada and sneaking it over the border because it was alot cheaper in Canada than in the U.S. ..(sound familiar??..some things never change)….Then, after WWI, the U.S. basically took the patent away from Bayer and it became generic and widely available.
Along the way, aspirin was found to help prevent stroke and heart attacks, at least in men. For it to work, we need enough aspirin to affect the platelets; the low doses(baby=80mg) may not do that sufficiently, or at least not in most people. We probably should do “aspirin sensitivity testing” to see if our dose is effective; after all, if we take a med(aspirin) for years or decades, shouldn’t we at least see if it is working? I think, in the end, we will end up with a dose closer to one full(325mg) aspirin daily. The downside, of course, is GI(stomach) bleeding/upset. There are risks to all meds.
Now, it has been shown, for a # of years, that aspirin(and possibly other nsaids, or antiinflammatories) may also help prevent certain cancers. Which cancers, and at what dose aspirin, is still unclear(most notably mentioned are colon and breast cancer).
We also know that one aspirin a day will help prevent headaches, or at least cut down on them, in certain people. Aspirin is also in a # of meds(Excedrin, for example) that treat a headache. In fact, 1000mg(3 regular aspirin) may be almost as effective as a triptan(Imitrex, sumatriptan, etc.). Aspirin is also effective for some with arthritis. Further, aspirin may help to prevent blood clots or strokes in certain susceptible people, such as those with anticardiolipin antibodies(immune system is overactive, causing blood clots/miscarriages/strokes). I started publishing on this in 1988, more recently did an update, on this site, on The Immune System and Migraine…I was convinced 26 years ago that the immune system was a key in headache, now am more convinced than ever………
A new product is out, with less acetaminophen than Fioricet or Esgic: Orbivan, which has 50mg of butalbital, 300mg of acetaminophen, and 40mg of caffeine….very similar to Fioricet/Esgic(brand names), or the generic for those.
Also out is a version without butalbital, similar to Phrenilin, is Orbivan CF, which has 50mg of butalbital and 300mg of acetaminophen, without caffeine.
I feel that butalbital meds are a 2-edged sword: they are useful as painkillers for headache patients, but on the downside they may add to medication overuse headache(MOH) and may cause addiction. Despite these downsides, i do feel they play animportant role in a # of situations, and should remain on the market.
There was a negative anti-butalbital article out in the journal Headache several weeks ago; I wrote a Letter to the Editor titled “IN DEFENSE OF BUTALBITAL”, stating all the pluses and minuses of these meds. I will post that letter, which was accepted into the journal for publication, at some point.
Patients often say “I can tell the weather with my head”..and they often can!!Weather is right up there, along with stress and hormones, as a major trigger…we(migraineurs..or migraineuses) inherit a very sensitive brain, genetically, that fires headache waves with a # of triggers..weather, stress, hormones, foods, sunlight, odors, undersleeping(or over), etc…..What is it about weather??
..we don’t really know..certainly when a front is coming in, and barometric changes are occurring(BTW, the National Weather Service predicts many things, but I cannot find a predictor, for migraine people, of barometric pressure changes..if you know of a service that predicts pressure changes, please let us know), migraine people often experience a headache. Some studies have linked highly sunny days to increased headache; which weather trigger is most important is variable between people. Not that we can change the weather, anyway….and BTW, the people, in my experience, who move(say, to San Diego or Hawaii) because of their headaches, usually report no major change..maybe a few less weather headaches, but overall about the same. They have headache clinics in those nice places, also. for comments: doclarryrobbins@aol.com


















